Tuesday, September 13, 2016

'And You! And You! And You! You're Gonna Love Me!!'

Charles Sanchez Heads to USCA
 

September 12, 2016


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Charles Sanchez (Credit: Rick Stockwell)
Charles Sanchez is the engaging creator of Merce, a comedy musical series featuring a leading man living with HIV. Sanchez is heading to the 2016 United States Conference on AIDS (USCA) as a social media fellow, where he'll be blogging about his experiences. But first, he shares his journey to this opportunity with TheBody.com.

It was November 2003, and I was living in Little Rock, Arkansas. I woke up in a hospital room surrounded by my family, doctors and nurses. I wasn't quite sure why I was there, but I knew it wasn't good. I was told that I had been brought in almost three weeks earlier with acute Pneumocystis pneumonia, histoplasmosis and thrush. I had been kept in a drug-induced nap all that time while my body and the doctors fought for my life. I had a viral load that was through the roof, and my T-cell count was 4. That's how I found out I was HIV positive.

I'd like to say that, in that moment, my inner diva (so many gay man have one) rallied, stood up and belted, "I'm Telling You, I'm Not Going" as fiercely as Jennifer Holliday on the 1982 Tonys. When I write the movie, that's exactly how it'll happen.

In reality, it was a much quieter thing. I was shocked, scared, confused and sad. My first reaction was to calm my family about the news, but they'd already been told three weeks earlier. My family knew about my HIV before I did. I was told that the worst was over; and although I still had a ways to go in my recovery from all the infections, if I just did what the doctors recommended and took the medications prescribed, I'd be fine. I wasn't going to die of AIDS in 2003.

But I still had to figure out how to live. I didn't know what to do or what it all meant. Once my family and the doctors and nurses left the room, I was left alone with my thoughts. "Well," I said to myself, "I guess that's it. It's all over. Now I'm just a pathetic AIDS victim. I'll just have to sit quietly in the corner, a living red ribbon, sipping herbal tea and mournfully humming songs from Rent all my days."

Then another voice (perhaps my inner Jennifer Holliday?) thought, "WHAT? Quiet in the corner, Cinderella?? That's not who you've ever been! Why start now?"

I remembered that I have a big mouth, and that I'm funny, and I can write, and I'm not afraid to get up in front of people. What if I used those talents for good? What if I could be the guy who has HIV but is okay? What if I could show a positive view of positive people?


Credit: Johnny Coughlin

Here it is, almost 13 years later, and I'm doing just that. I'm living in New York, single, (mostly) happy, with an undetectable viral load and a healthy T-cell count. I've created (along with my producing partner Tyne Firmin) an HIV-positive musical comedy web series, Merce, which shows a man living with HIV who is not sad and is not dying. Moreover, he has friends, family, dates and sex, and he sings and dances through it all. Because of Merce, I've become an HIV advocate, as well. Just this year, I've been lucky enough to attend AIDSWatch in Washington, D.C.; I was included in the Start Talking. Stop HIV. campaign; I was invited by Avram Finklestein and Mark S. King to be a part of the HIV Divide Flash Collective; and I was asked to be involved with the Prevention Access Campaign's U = U initiative.

Now, I'm honored and thrilled to be a social media fellow -- sponsored by the National Minority AIDS Council -- to the United States Conference on AIDS in Hollywood, Florida, September 14-18. I'm going to be learning how to use social media to increase the visibility of HIV. I'll be attending meetings and workshops, meeting people and raising my awareness of HIV causes. TheBody.com has graciously given me this platform to write about my experiences. I've never been to anything like USCA before, and I'm a little intimidated by the task. I'm good at showing up, though, and will let the Universe sort out the rest.

The man who was lying in that hospital bed almost 13 years ago could not have dreamed the life I'm able to live today, and the opportunities I've been given amaze me. "Grateful" does not begin to describe how I feel. More like "Grateful with jazz hands."

And guess what? One of the many luminaries at the USCA is going to be Jennifer Holliday! My inner diva wants to have a diva-off with her. My outer gay boy is just hoping for a selfie.

Copyright © 2016 Remedy Health Media, LLC. All rights reserved.


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Self Stigmatization: How I Fooled Myself Into Thinking I'm Sick
More Personal Stories of Gay Men With HIV

Read more articles from The Body, here. 

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