Thursday, June 28, 2018

🏳️‍🌈✝️🔻 Everything the New York Times Got So Dangerously Wrong About HIV/AIDS

Pacific Press/Getty Images

"AIDS is still very much a crisis, and saying otherwise is dangerous to Black and brown communities across the country."







In a New York Times op-ed published on Tuesday, a historian named Patrick William Kelly wondered whether the advent of PrEP, the once-daily pill that prevents HIV transmission, has brought about “the end of safe gay sex,” as his piece’s title held. “AIDS is no longer a crisis, at least in the United States,” he wrote, “and that is a phenomenal public-health success story. But it also means that an entire generation of gay men has no memory or interest in the devastation it wrought.”

Kelly’s piece was riddled with inaccuracies, reaches and problematic assumptions, but that statement in particular — that AIDS is no longer a crisis — is borderline offensive. As a Black queer man who not only lives with the virus but has done years of work within the HIV/AIDS space, including testing, counseling, and writing more than 200 articles about the epidemic, I can emphatically say that AIDS is still very much a crisis, and saying otherwise is dangerous to Black and brown communities across the country, where HIV rates remain at epidemic levels.
Over two years ago, CDC researchers first revealed the shocking extent of that epidemic: a new analysis had found that at then-current diagnosis rates, about half of all Black men who have sex with men (MSM) and a quarter of Latino MSM in America would become HIV-positive during their lifetime. If we allow false truths like those in Kelly’s op-ed to propagate, the HIV crisis among Black and brown queer people won’t be stemmed anytime soon.

The article starts off by discussing a study of 17,000 gay and bisexual Australian men released this month, which indicated that PrEP use had risen among HIV-negative men from 2 percent to 24 percent from 2014 to 2017, condom use dipped from 46 percent to 31 percent. Yet the article never discusses the reasons these men stopped using condoms, including whether they entered monogamous relationships, or serodiscordant relationships where one person used ART while the other used PrEP — two valid reasons for why condom usage could have decreased. The piece later cites a 2016 UCLA study that found PrEP users were up to “25.3 times more likely to acquire gonorrhea and a shocking 44.6 times more likely to develop a syphilis infection,” but then notes that other studies failed to find a statistically significant rise in STI rates among PrEP users, contradicting itself.

Indeed, in responding to Kelly’s article, critics have noted that it makes all too much sense that PrEP users might display higher STI rates, given that clinical guidelines for prescribing PrEP hold that users should be tested for all sexually transmitted diseases and infections every three months. At this more frequent rate of testing, it only follows that STIs will be diagnosed and treated more often among PrEP users, meaning clinicians can treat these infections (which often don’t display symptoms) more frequently, thus decreasing the risk that they’ll be passed along. Activists like the inimitable Peter Staley and others took to Twitter to point out these and other flaws in Kelly’s work, including misinterpretations of historical HIV/AIDS transmission rate data.


Yet beyond the op-ed’s dangerous assumptions and misinterpretations, the article states that declining condom usage correlates with a “historical amnesia” about safe sex and the HIV/AIDS epidemic among the gay and queer community. It’s a statement that could only be made by someone who isn’t affected by the epidemic — which, again, is still very much ongoing — in the ways that black and brown people continue to be. There is no amnesia for us. Now, that isn’t to say that fear of HIV hasn’t declined in America; as modern science has produced medicines that allow people with HIV to live with a normal life expectancy and quality of life, and as medication schemes like PrEP and TasP have changed lives, that fear is certainly less prominent. Yet to say that we have forgotten how the virus has decimated our community is simply untrue, and disrespectful to the numerous Black-led agencies who continue doing work in communities most affected by HIV/AIDs, ones that the government has let down.

Indeed, Kelly himself displays the most historical amnesia here. “The very idea of ‘safe sex’ emerged from the gay community in the early 1980s,” he writes. But abstinence and the promotion of safe sex has been the focus of American K-12 sexual education since its advent in 1919, and in many parts of the south, abstinence is still taught as the only form of safe sex.

“If a hyper-resistant strand of another life-threatening S.T.I. develops, we will rue the day that we forgot the searing legacies of our past,” Kelly writes near his piece’s end. It’s an incredibly dangerous statement. Fear is a tactic that has been used to oppress the queer community for hundreds of years. We have not forgotten about the devastation caused by HIV, because it is still all too present for many of us. But you can’t fearmonger people into using condoms, especially those from marginalized communities. Fearmongering leads to criminalization; an analysis by the Center for HIV Law and Policy found that as of last August, laws criminalizing HIV transmission still stand in 34 states, two territories and within the Federal Government. These laws are based in the fact that HIV was once considered a “death sentence,” and ruin the lives of innocent people, who are often unaware they have HIV in the first place. One should never, ever say that HIV or incurable diseases are karmatic retribution based on decisions one makes in the bedroom. This kind of rhetoric only leads to more disease-based criminalization, more stigmatization, and more fear.

It’s more than okay to promote safer sex and condom usage, and we definitely should be, given how HIV is still ravaging our country. But that can’t come at the expense of facts, fear, and the longing to paint HIV as anything less than a “crisis,” simply because one’s community has less investment in the epidemic than others. It is our duty to protect our community from the homophobic tactics that were used to dictate our sexual practices for so many years. The radical sense of community was never lost with the AIDS epidemic — the proof is in the fact that many of us are still fighting a war that articles like this seem to think we have already won.

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Wednesday, June 20, 2018

🏳️‍🌈✝️ New Lawsuits Against Gilead Over Its HIV Med Tenofovir

Atripla is one of several combo tablets that contain the original form of tenofovir.
Two men claim they developed bone and kidney problems after taking TDF. A related class action lawsuit has also been filed.

May 10, 2018 By Trenton Straube


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Two California men living with HIV have filed a personal injury lawsuit against Gilead Sciences, claiming that the drugmaker intentionally delayed the development of a safer version of the widely used HIV med tenofovir. The original form, tenofovir disoproxil fumarate (TDF), is sold under the brand name Viread and found in Atripla, Truvada, Stribild and Complera.
As The Los Angeles Times reports, the lawsuit also claims Gilead hid the risks of the less-safe version of tenofovir while letting people with HIV take a medicine that was harmful to their kidneys and bones.

The men’s lawsuit is being funded by AIDS Healthcare Foundation (AHF), which operates HIV clinics across the globe. According to an AHF press release, “a class action lawsuit against Gilead by two other Californians living with HIV who suffered bone and kidney damage from taking TDF was filed on behalf of all persons located within California who were prescribed and ingested Viread, Truvada, or Atripla from October 26, 2001, through the present, who were personally or whose physician was exposed to Gilead’s misrepresentations.” (This is not AHF’s first lawsuit against Gilead regarding tenofovir. A judge from a similar 2016 case ruled that Gilead did not illegally manipulate the patent system, but an appeal is currently pending.)

A quick history of the med: The Food and Drug Administration approved Gilead’s TDF as an HIV med in 2001. According to the lawsuit, Gilead had already begun research on an improved version of the med, called tenofovir alafemanide fumarate (TAF), but withheld the research and delayed the release of TAF. The FDA approved TAF in 2015 as part of Gilead’s single-tablet combo pill Genvoya. Since then, TAF has been included in other HIV single-tablet regimens, such as Biktarvy and Descovy (for more in POZ, click #TAF).

According to the Times, the lawsuit claims that “by holding on to its research and shelving TAF, Gilead could patent TAF separately and save it for development when their patent and exclusivity on TDF ran out, in 20 years.”

The Los Angeles Times reports that both men in the lawsuit took the older tenofovir and developed related health issues. Michael Lujano of Los Angeles County took TDF from 2004 to 2015 and has developed osteopenia and osteoporosis of the spine, neck and hip. Jonathan C. Gary of San Diego County took TDF for 10 years beginning in 2001. In 2010, he was diagnosed with the rare kidney disorder Fanconi syndrome, and last year he was also diagnosed with osteopenia and osteoporosis.

“A company I trusted with my life took advantage of that trust by misrepresenting the side effects of TDF, calling it the ‘Miracle Drug’ and using other deceptive marketing strategies,” Lujano said in the AHF press release. “Gilead shelved a far safer drug, TAF, simply to increase its long-term profits. I’m bringing this lawsuit to try to hold Gilead responsible for their reckless focus on profits over patient safety.”

In related news, a recent analysis found that the updated version of tenofovir may not actually offer any safety benefits. For details, read the POZ feature “Is Gilead’s Entire HIV Enterprise Built on a False Promise?

More from POZ, here
  

Sunday, June 17, 2018

🏳️‍🌈✝️ When The Lights Go Out




 
06/10/2018
 
 
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“No one lights a lamp and then puts it in a cellar or under a basket [hiding the light], but [instead it is put] on the lampstand, so that those who come in may see the light. The eye is the lamp of your body. When your eye is clear [spiritually perceptive, focused on God], your whole body also is full of light [benefiting from God’s precepts]. But when it is bad [spiritually blind], your body also is full of darkness [devoid of God’s word]. Be careful, therefore, that the light that is in you is not darkness. So if your whole body is illuminated, with no dark part, it will be entirely bright [with light], as when the lamp gives you light with its bright rays.” Luke: 33-36


You never know ahead of time when God is going to use you to bring His Light into someone elses life, therefore the scripture to remind us to always be ready day or night 2 Timothy 4:1-2;
I solemnly charge you in the presence of God and of Christ Jesus, who is to judge the living and the dead, and by His appearing and His kingdom: preach the word [as an official messenger]; be ready when the time is right and even when it is not [keep your sense of urgency, whether the opportunity seems favorable or unfavorable, whether convenient or inconvenient, whether welcome or unwelcome]; correct [those who err in doctrine or behavior], warn [those who sin], exhort and encourage [those who are growing toward spiritual maturity], with inexhaustible patience and [faithful] teaching.
In every situation we find ourselves in, we must always remember God may use that moment in time as a witnessing moment to someone who is in need. You may be at your worst or lowest and that may be the time God uses for you to be a light to someone else.
So remember these scriptures during those times:
Do everything without murmuring or questioning [the providence of God], so that you may prove yourselves to be blameless and guileless, innocent and uncontaminated, children of God without blemish in the midst of a [morally] crooked and [spiritually] perverted generation, among whom you are seen as bright lights [beacons shining out clearly] in the world [of darkness], holding out and offering to everyone the word of life, so that in the day of Christ I will have reason to rejoice greatly because I did not run [my race] in vain nor labor without result. Philippians 2:14-16
For that is what the Lord has commanded us, saying,
I have placed You as a light for the Gentiles, So that You may bring [the message of eternal] salvation to the end of the earth.” Acts 13:47
But whoever practices truth [and does what is right—morally, ethically, spiritually] comes to the Light, so that his works may be plainly shown to be what they are—accomplished in God [divinely prompted, done with God’s help, in dependence on Him].” John 3:21
The Lord reminded me on June 9th 2018 just how BIG He is and how He lets things happen sometimes in our life so we can be a blessing to someone who has been seeking answers from Him.
On this day I had been feeling a bit off most of the day. As most of you know I am living this part of my journey living with HIV and all the numerous complications that can come alone with having HIV. One of those many things has been my heart and blood pressure. On this day I had run out of one of my main blood pressure medications because of delivery timing from the pharmacy. Yes, as anyone else in my situation would do, I complained and grumbled to myself about it just a little. I do still have an old script that had recently been filled of another blood pressure medication I was no longer taking so I used that one in place of the one I was out of that day. The last blood pressure reading I took for the day around 6pm was great. It was 111/58; however my heart rate was quite elevated for me being 85. I felt a little swimmy in my head but went on doing what I needed so Scott and I could go out to eat. I fed the dogs, let them out and then I was ready to go. By the time I did all that my blood pressure had started to decline quite rapidly so I decided to take it before we left to go to eat. The reading at this time 6:51pm was 62/37 with a heart rate of 72. This should have been the first warning sign that something was going wrong. My blood pressure never drops that fast after taking medication. I am usually waiting hours for my blood pressure to come down to normal ranges after taking my medication. Just the two days before my blood pressure had been staying up in the 160’s and keeping nauseated to the point I could not keep any food down.
It is now 7pm on July 9th and we are off to eat Mexican food because we knew that would help bring my blood pressure up {because of all the sodium}. On the way to the restaurant my hearing started going, my eyesight was growing dim and I just did not feel right. I kept telling Scott I could not hear him and I could not see. By the time we arrived at the restaurant it was between 7:15pm and 7:30pm I was not feeling right at all. As I got out of the car and stood up I felt my lights going out. Scott said I told him three times I did not feel right as he watched my eyes glaze over and I hit the pavement. I remember saying one time I did not feel right then opening my eyes to see the pavement in my face. I was confused, scared, and still dizzy from the whole experience. He ran into the restaurant for wet clothes to clean me up from the blood coming out of my knee. After he helped me up we went on inside to eat. He told me I kept passing out at the table so we got our food to go. He decided it was best to get me to the ER to be checked and that is where I needed to be.
When I first arrived I had no idea where I was or why I was there. My blood pressure had bottomed out at 54/28 and they were pumping IV Fluid two bottles at time into me. My first reality check was when I looked at the clock and it was 10pm. Where had all the time gone? I really checked out at around 7:30pm and was just now coming back to life.
At one point in this evening of craziness, I was alone in my room with the nurse. Scott had gone out to get my Mom because they were getting ready to take me back for scans and x-rays. It was at that moment that seemed time stood still and it was just me and the nurse and God. I remember asking the nurse if she was a Christian, then the Lord took over. After what seemed to be an eternity, although just moments in time I was finishing up my story as we both had tears in our eyes. Mom came in the room asked me if I was okay because she could tell I had been crying. All I could tell her was God is so good.
As the night passed on the fluids began to work and I was back to my chatty self cutting up with the staff and getting some good laughter in. All the tests had been done; the results were looking good so the wonderful ER Doctor said I could go home as long as I promised her I would not forget to eat and to drink lots of water replacing some of the green tea I drink.
I left the ER feeling so blessed that God allowed me the horrific, scary experience even if it was just to see the smile through the teary eyes of that beautiful nurse.
On the way to car I noticed a blue sheet of paper stapled to the back of my discharge paperwork. It was a precious note from the awesome nurse God brought into my life that evening. I want to share that note with you so you know how GREAT GOD our creator is and so HE gets ALL the glory for all the things He had me say. I have of course blocked out her name. I know that one day she may be reading this and know who she is and that is all that really matters to me. God, my wonderful nurse and me in that order because it was God who wanted to speak to that nurse, I was just the always willing vessel.
 
 
 
I give God praise as I sit here with tears rolling down my checks once more just thinking about how TOTALLY AWESOME our LOVING GOD is and how much HE will use you if you just let HIM take the controls. Thank you Heavenly Father for showing me one more time how much you love and care for each of Your children’s needs.
God Bless you all on this wonderful 10th day of June 2018.
Always and forever in Christ Service,